Blog Posts / Facebook Posts / Input from Cancer Support Groups – participants, leaders, PhD psychologists, Psychiatrists – all weigh in . . . join the conversation!
12/2/2018- My life has certainly changed since I have been taking MCT oil and getting acupuncture! It has made all the difference and I am not at all tired like I once was…I can go and go now on my full medical dose. You might like to look into it as an extra boost with anything..it is coconut medium chain triglycerides and it is something that you can add in your coffee or tea in the morning and then you can add in more later if you like. I just use 1 tbs. a day so far. – Marlana
9/23/2018- Hi All – As a caregiver for my husband since 2011, I have “grown” into my role and responsibility. I had to go through several steps to get to where I am today. I started with panic, fear, sadness and then full-blown advocacy to find out about LMS as quickly as possible. I made it my goal to educate myself so that I could ask the best questions possible during my husband’s appointments.
Being a part of the NLMSF, I have found a new voice – to help others as much as I possibly can. This is my goal and daily focus – to help anticipate the needs of others, talk directly by phone to help, and be as proactive as I can possibly be. I love meeting everyone at our multiple annual patient-family – caregiver programs. I have had many great relationships built from ongoing telephone contact. Recently visited a patient that we have been in touch with for three years- in the UK. My husband and I continue to help her from Colorado, to try to get her through her difficult LMS journey with multiple surgeries and a few setbacks. But we are with her all the way to see her through.
It has become a very rewarding and important experience for me to be able to try to help in any way possible anyone who contacts us.
Blessings to all,